Fibromyalgia, CFS, and PUP

Discussion in 'Camping for the Medically/Physically Challenged' started by CampFamily14, Jun 8, 2018.

  1. CampFamily14

    CampFamily14 New Member

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    I have been having chronic pain issues for several years. After testing to rule out other conditions, I was diagnosed as having fibrolmyagia and possibly chronic fatigue. My biggest issue is really just the fatigue. I wear out very easily, and it takes a long time to get my energy back. I also sometimes have a hard time remembering details like grocery lists, bills, and such. I live with a notebook to keep track of these things.

    We wanted the PUP, because I will often be traveling alone with my girls and the PUP makes us a bit more secure in weather. Plus, it's easier to set up by myself than our giant family tent is.

    I am completely remodeling the PUP that was gifted to us a couple of days ago. Are there any design features that I can add to make it easier/less tiring to set up, take down, etc? Any PUP tips in general for pain and fatigue?
     
  2. Orchid

    Orchid Sharp Shootin' Grandma

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    Buy a socket genie and drill for lifting, if you have a manual crank. If you always have access to electricity, than an electric drill from Harbor Freight will do it and much cheaper than a cordless.

    Lifting is really the hardest part of setting up. Pulling out the bunk ends is easy.
     
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  3. nineoaks2004

    nineoaks2004 Every meal is a picnic and every Day is a holiday

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    Sorry about the medical problems, I hope the re-rejuvenation of the PUP goes well. Check the bed and if it is too hard you might need /want a foam topper for it to be more comfortable. With any medical problem, take your time, rest when tired and do not over-do it, You are not in a race for set up and break down. Orchid gave you some great ideas too.
    Good luck and happy Camping
     
    Last edited: Jun 8, 2018
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  4. jmkay1

    jmkay1 2004 Fleetwood/Coleman Utah

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    Also try to get the kids involved in set up. My little side kick loved to help with raising the roof I always took the last bit so as not to overlift, she was able to do my stabilizers but I did snug them up a bit more. Bungies, Making beds, Setting chairs up, outside carpet etc. My side kick is now 14 and can set up nearly everything, but isn't strong enough for the shepherd poles or my slide out yet. Although I get a lot more resistance than I used to.
     
  5. swordfish

    swordfish Well-Known Member

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    To fix your fatigue and fibrolmyagia problems I recommend a book called "Dirty Genes" by Ben Lynch, M.D. He tells exactly what is wrong with your genes and how to clean them up.
    Regarding set up and take down, take absolutely minimum with you. The more things you take, the more trips back and forth to the car and more tiring you get.
     
  6. Arruba

    Arruba Active Member

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    I'll start by saying congratulations on hanging in there and trying to keep on. My wife is also fibro sufferer. Most days she wins, sometimes not so much. So on to your question:

    As mentioned the drill and socket, and topper are good tips. Getting a step stool to get in and out of the bunks may help.
     
  7. swordfish

    swordfish Well-Known Member

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    message deleted
     
    Last edited: Jun 19, 2018
  8. PaThacker

    PaThacker Well-Known Member

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    My girlfriend at age 44 has the same problems. I take her boondocking or to state parks. She can not do much but lay around all day and consumes a ton of pills. The pup is ideal to relax in and take up some of the sights outside. I do not expect it to cure any of the issues of the pain.
     
  9. Shaman1

    Shaman1 Well-Known Member

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    Besides the hints above, lubricate everything. Consider changing drop down stabilizers for screw type so you can use the socket genie on them too.
     
  10. Shaman1

    Shaman1 Well-Known Member

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    I meant to ask, where are you in north Alabama? I grew up around Huntsville.
     
  11. tiredrusty

    tiredrusty New Member

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    Good for you to keep.camping. I too suffer from fibro ME and RA my biggest help was we took 2 by 4s and made a step to help get into camper. I also would like a step inside to get into bed I am 6 ft tall but still tough for me to get up there. I take two chairs just for me a softer one and a harder one. Its hard to get comfortable. I plan ahead meals and freeze them flat. Nachos are a big hit all ready made and throw in cast iron over the fire to heat up. Enjoy
     
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  12. FamilyMank

    FamilyMank New Member

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    That is a BRILLIANT idea! We will look into that! I have a connective tissues disorder (originally misdiagnosed with fibromyalgia), and have a ton of pain/mobility issues.
     
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  13. Orchid

    Orchid Sharp Shootin' Grandma

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    I can't take credit for the idea. I actually learned of it here, I believe. It's never failed us. We haven't cranked manually in years. Lots of people do the last couple of turns by hand, but it goes so slow that we don't feel the need to do that. It's easy to stop the instant the roof clicks into place.
     

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